I’m Scared to Talk about This
This is super hard for me to talk about. I've mentioned before that I have a chronic illness (one that we really don't know what it is or how to fix it). Sometimes people get this impression of me as some sort of perfectly organized home manager whose life is never in chaos…and that just couldn't be further from the truth.
I love organizing and sharing ideas on my blog and my YouTube channel, but sometimes organization just has to take a backseat to life. If you're in that season now, know that you're NOT ALONE. I share more in the video here, or keep reading if this resonates with you.
We all go through hard stuff in life. I don't care who you are or how much money you have– you will face challenging times, and some of those times can absolutely bring us to our knees. It's in those times that the to-do list, the organized house, the cleaning, the fancy dinner making just can't be a priority.
Sometimes it's a bunch of little things that all add up. Maybe you're going through changes. You've moved. You've had a baby. You've gotten married or divorced. You've had a job change or a major loss. Maybe there's personal or emotional turmoil going on with you. If you're in a rough patch, it's really not the time for you to be worrying about alphabetizing your spices, LOL!
Maintenance Mode
In these times, the best thing to do can be to go into “maintenance mode.” What's the absolute minimum you have to do to keep your house from dissolving into utter chaos? Just do the minimum. You don't always have to eat fancy (or even super healthy) meals. Your laundry doesn't have to be folded fresh from the dryer, and the vacuuming can probably wait a couple weeks (eek).
I've always been a very driven, motivated person, and, okay, even a bit of a perfectionist. I remember the exact time in my life where I realized I just had to let go of perfection. Several years ago, I had just had my second baby and two weeks later moved across the country for my husband to start a new job. I had to use the GPS to go to the grocery store (with a toddler and newborn in tow!), and my husband was trying to figure out his new job. My business was taking off, so I was overwhelmed with figuring out how and when to hire help. I was stretched THIN.
It was a few weeks after the move when the unpacking STILL wasn't close to done, and I was just going a bit crazy. I had to prioritize. These were my main categories/responsibilities:
- My kids/family
- My business
- My house
Obviously, my kids are a top priority. I really wanted to focus on my business because I felt like it had potential, and it was something I loved doing. So I let my house go a bit. I didn't clean much, and our meals were about as basic as it gets. Sometimes we ate cheese and crackers and called it dinner!
You cannot do it all.
I don't care what it looks like on social media. No one can (or should!) “do it all.” We see snippets of people's lives on social media. I have to fight the comparison monster a lot myself. It always looks like other moms are doing more with their kids and doing it better. But I'm only seeing what they put on their IG stories. I really have no idea what their real life is like.
People so often talk about how positive I am or how organized and efficient my house is, but it is definitely not always like that! Sometimes I'm crying in the corner of my closet. Maybe 20% of the time my house is near perfectly in order. About 50% of the time it's average– a bit messy but not out of control. And the other 30% of the time, it's a hot mess! But you don't see that part on YouTube. I've tried to show things more realistically, but no matter what, people see only (at most!) about an hour of my life each week.
No matter what it looks like on the outside, no one can do it all. No one is perfect. And no one should pressure themselves to try to be perfect, either. It's no way to live!
My story
After that initial struggle after the move, things got better for me. I got part time child care. I hired help in my business. We ended up moving back closer to family. Life became much more manageable for a while. Then I got a curve ball– a chronic illness.
I never really appreciated what chronically ill people endure until I became sick myself. There are worse things, but this is the hardest thing I've ever had to deal with. My illness, which remains undiagnosed, mostly involves abdominal pain. But I'm not talking an upset tummy. I'm talking intense, put me in bed with a heating pad pain that has sent me to the ER on several occasions.
The worst is the unknown. I never know when I'm going to have a good or a bad day, and sometimes the painful episodes can last weeks or months. I never know when or if it will end or for how long. That really stresses me out! It's a constant weight on me.
How I get through it
I've learned that for myself at least, the best thing for me is to work through it to an extent. I can't pause my life forever. If I had a stomach bug, of course I could put life on hold for a day or two. I wouldn't need to cook, clean, and my husband could take over child duties. But this isn't just a day or two bug. It's my life now.
Living with pain takes soooo much of my energy. Take filming a video (which I LOVE!). If I'm having a good day, I feel energized afterward. If it's a bad day, I dread putting on makeup and my happy face and making the video. Afterward I'm wiped out, both physically and emotionally. But I still have to show up. I have to show up for my business and for my family because life can't just stop for me all the time.
Of course there are limits to how far I can just push through it. And if you're in a similar situation, pushing through it may not be the right choice for you. What has made this all somewhat doable, though, is giving myself permission to let the house slide when it needs to.
If I have a really good day, I am NOT giving that energy to the house. I'm taking my kids to the park, and we're bonding. They are getting my best energy, NOT my house! And that's OKAY! What I've learned over the last few years of my illness is that I have to:
- keep my priorities in order
- not compare myself to others who may be able to do more
I do the best I can, and then I don't beat myself up. Because I did my best!
You're not alone
If you can relate to this, just know you're not alone. Even if you're not dealing with an illness like I am, we all have hard seasons. In those times, the house is just not the most important thing. I would like to say in my case (or in yours) that things will get better in time. But sadly they may not. I know that sounds like a huge downer, but it can also be freeing because it can allow us to just live in our reality, do our best, and then appreciate ourselves for what we can do and not beat ourselves up for what we can't.
One way I am able to stay positive (most of the time) is that I now realize what a total GIFT a good day is. If I have a good, relatively pain-free day, I make the absolute MOST of it! And I treasure it for what it is. I never take those days for granted anymore. So, I just try to get through the bad days and enjoy those good days to the max.
If you're beating yourself up right now because your house just isn't what you want it to be, then I”m going to tell you now– STOP IT! You're not a failure. You're a person struggling through a hard time. Whatever you're going through, your house is probably not the most important thing right now. Things probably will not be like this forever, and there will always be time for more organization later. Just be kind to others and to yourself! We are all going through something. We are all here to help each other out and lift each other up! No one is perfect, and you don't have to be either!
Carol Coots Says
Thank you for sharing your life. I understand where you are coming from as far as health and housing issues(organization). I have Fibromyalgia really bad with severe fatigue and lots of pain. As much as I want this home totally organized I know it is not going to happen any time soon. I am doing a clutter challenge where you have to work ten minutes a day. This puts it in bite size amounts.
Biz (Italian nickname) BisNonna (Italian Great Gram) Says
Laura, I am more concerned about your health & not about organizing at this moment????
First & foremost Pray ????????✝️
God is good, He hears your prayers, all you need to do is ask for insight!!!
Have you tried getting a Colonoscopy?
Have you tried CT scans of your stomach?
What testing have they done?
Have you tried essential oils?
Please contact me anytime????
Alicia Says
Hi, Laura. Please don’t be scared to talk about that subject. You talking about it may help others. I, too, deal with some chronic, yet invisible, illnesses. You are so right – priorities! Not only do you have to prioritize what really needs to get done, you also have to put your health first. If I’m having a good day, sometimes I say to heck with the housework, & I get outside & enjoy the nice weather. I hope you find answers soon, & in the meantime, keep up the great work. xo
LeAnne Says
Thanks for sharing this. I’m so sorry you’re dealing with a chronic illness! But good for you choosing your family over the house. In the future, when your kids are grown or leaving for college, you will be so glad you did!
Heidi Says
Laura, Thank you so much for putting yourself out there with this post. You are such an inspiring woman and I love reading your posts.
Beth Gordon Says
Thanks for sharing Laura! I appreciate hearing from an organizing expert that it’s ok that other matters take priority sometimes. That’s real living! But I’m sorry for the pain you are going through – please know I’ll be praying for you. Again, thank you for sharing! I appreciate you!
Dee Daum Says
My heart hurts for you. How scary to not have a diagnosis. You’re a champion for your coping skills and I’m not surprised for your words of encouragement to others.
Don’t know your history of doctors and tests but i do have a friend who finally got answers for her health problem by going to Mayo Clinic.
Will keep you in my prayers. Hang in there and thanks for all you do !
Janet B Hassing Says
Have you ever talked to Natalie Bennett (vlogger) about her health problem? She mentioned one time that she had terrible stomach migraines that would sideline her. Just wondering if you had something similar. I had never heard of them before. Take care and prayers for finding out what the cause of your problems are.
Kit Says
Thanks so much for sharing what you are going through. We are a multi generational household of 7 and do struggle with keeping our home the way that works for all of us. Perfection isn’t the ideal. A happy home is our goal.
I love organization and get many great ideas from you. I’m the Nana and want to be supportive of my home schooling daughter-in-law, my work from home son, my semi retired husband and three beautiful grandchildren.
Balance of Nature products help keep us healthy. And a positive attitude when life gets tough.
Hugs to you!
Kit
Sherry Says
I think this is one of your most meaningful posts.
As a fellow comrade who deals with chronic pain, I totally get it.
You are right on target with doing the fun things with your kids.
And you are so right that chronic pain is a REAL energy zapper.
No one really “gets” chronic pain and all its repercussions, unless you have or have had it.
I’ve spent more than a few afternoons/evenings crying due to the pain and the frustration.
Just know to never give up looking for answers!!! There’s a doctor out there who will figure this out!
I have my diagnosis, don’t like it, but I do have it!????????♀️
Know that you are in my prayers on this journey and praying for you to find the right Doctor/person to get this figured out.
And here’s a big ol Texas Hug for you!❤️
Juanita Says
Thanks for being vulnerable. Yes, chronic pain is hard to deal with, I know as I too have had bouts with pain, in fact so much so, that my pain tolerance according to my physical therapist is super high and crazy. But, as you say, life must go on! Each day is a day to treasure. I love that you can be so honest!
Stacey Yeend Says
I enjoy your emails.
Paola Says
Love this. I deal with chronic back pain. It’s hard, and it’s hard for others to understand. I’m doing so much better now, but flare ups happen. I am trying my best to manage and prevent with the knowledge I’ve gained in the last few years. What has really helped me has been learning from people like you, the FlyLady, the minimal mom, clutterbug, Dana k White, you have all changed my life forever. I have declutter so much and have made it a habit, which has made my life so much easier. Sticking to FlyLady’s routines has also saved me!
Pam Says
As a retired nurse I am congratulating you on taking care of you and your health and family first. If you don’t have your health and your family – you have nothing. All the other things are just that things. Yes, we have things we don’t want to lose but in the grand scheme of things Life is all that matters.
Here’s hoping that you find out what is wrong health wise, get better, and know your family is much better because of your decision.
Jennifer Says
This is exactly the message I needed to hear today. Thank you for your vulnerability and authenticity. It’s my prayer that medical professionals will find cause of your chronic illness and an effective treatment. Blessings to you and your family.
Char Says
I just coincidentally read an article today that was about severe stomach pain and the surprising answer to it. It’s from The Washington Post July 8, 2023 titled Medical Mysteries: A Surgeon’s ominous pain and a question of grilled meat.
Everything happens for a reason and I would feel remiss if I didn’t pass this along.
Kas Says
I’m so sorry you’re experiencing chronic illness. I randomly saw this article a few days ago & while I have no idea if any of your symptoms match up with this, I want to pass it along on the off chance it’s helpful to you (or anyone who happens to see this).
https://www.womansworld.com/posts/health/sucrose-intolerance-on-the-rise/amp
Jodi Says
Hello Laura, and thank you for sharing your story as difficult as it was I think it gave a lot of us so much-needed freedom. I have severe arthritis so pushing through the pain I understand & I wanted to give you something to research something new I’ve started to do ~Earthing or maybe you’ve heard of Grounding ~it has helped me tremendously. Appreciate you and all that you have to offer all of us. Take care.????
Becky Says
God bless you! And YES!!! Those are the BEST choices! Prayers for strength, grace, a diagnosis, and answers.
Sandra Jones Says
I’m so, so sorry. I also have an invisible chronic illness with no cure that gives me constant pain, fatigue and mind fog. Thank you for reminding me what is important. I don’t have a family so that is less pressure but it is also lonely and hard just to live daily. The bit about not comparing to people who can do more is a great reminder and one I have to work on, I had kind of forgotten.
I can only wish you the best where you are right now. I think it is good to acknowledge that it may not get better. I think there are things people can do to encourage pain free days (OMG, if I ever have one again I will be like you and treasure it) but following all the “rules” is no guarantee that there will be improvement.
Thank you for your honesty and vulnerability. It’s nice to be reminded I’m not alone. I’m sure you helped many, many people today.
Gail Says
Thanks for sharing. I understand. I have fibromylgia. Chronic illnesses are life changing.
Alison Says
I totally resonate with your comments and applaud you for being so honest and real.
I have had a very busy and traumatic five years and had to put my house and surroundings at the lowest end of priorities to survive.
I am emerging from this difficult time in my life and so grateful to still have a home to ‘declutter and organise’.
A lesson from this time is to be less judgemental, appreciate what I have and to know that I did my best even though to some outsiders I am living in a mess which I now have the time and energy to tackle.
I hope you get some answers for your condition and thank you again for your honesty.
Kellya Says
Thanks for having the courage to share this, it is so easy to idealize the life of others and think we are the only one falling behind. And this reminder to keep our priorities in order is such an important one. I hope you will get better soon and I send you a lot of love.
Barbara Says
Hi Laura. My daughter also has abdominal pain. Her pain started when she was 16 years old and now she is 23 years old. From when the lower abdominal pain started to now, the pain went from a few days a week to 24 hours a day 7 days a week. She spends most of her life under the heating pad. I had to home school her the last 2 years of high school because she was in too much pain to go to school. She has had 2 colonoscopies and 3 endoscopies and they could not figure out what is causing the pain. They call it an autoimmune disease but they do not have a name for it yet. We have taken her to the Mayo Clinic, Duke and Wake Forest. None of these have helped her. The pain causes depression and anxiety. She has been diagnosed with fibromyalgia, which is why she has so much body pain. She lives home with us (her dad and I). I am with her 24 7. I live my life around her pain. If she can not sleep due to the pain, I stay up with her. I do not like to leave her alone during all this pain. When she sleeps, I try to get some rest too. Occasionally she will get a day that the pain is not close to 10 on the pain scale, so we try to go shopping or do something that she would like to do. We try to enjoy that time as much as possible. If she over does it on those days, the fibromyalgia is worst the next day. We just live one day at a time. Family comes first. I try to keep a clean enough house but that is not a priority. I keep searching and talking to doctors trying to find one that can help her. I am not giving up. I know what you are going through. Please keep me posted on how you are doing. Maybe we can work together to figure out what is causing this and what can help this. I will be praying for you.
Llen Ryan Says
Dear Laura,
Thank you for your sharing. You make me feel that others struggle too.
Long story short, I’m headed to an Oncology appointment this morning to find out if there’s any issue going on.
I’ll take your advice and be grateful for all my blessings.
With gratitude,
Llen Ryan
Carol Says
Thank you for being “real”! You made my day today! Hugs!
Mary E. Crichton Says
Your story with chronic pain sounds a lot like my daughter-in-law. It was many years before she was diagnosed with POTS: Postural Orthostatic Tachycardia Syndrome. Now that she has been diagnosed, she at least has a name for it.
Deb Says
Thanks for sharing your story, Laura. I think we all have this idea that other people’s lives are so much easier or better or happier or more organized or whatever. It’s always good to get the reminder that what we see on social media is only what they want us to see! My heart goes out to you, dealing with chronic illness. It sure can’t be easy, so I’m glad you give yourself grace when things are out of control.
Debbie Says
Thank you for sharing! I agree, everyone has gone through difficult times and it was good to have the reminder that it’s OK for some things to fall through the cracks! I’m so sorry to hear about your illness. It must be extremely frustrating that you don’t have a diagnosis. I follow a blogger (Sara @ Faithful Finish Lines) who also experienced debilitating stomach problems for years. She was finally diagnosed with a Sugrose Intolerance. Praying for you that you will have many more good days than bad days! Thanks for all you do!
Amy Zumdahl Says
Laura,
I just finished watching your video sharing your life story concerning your chronic illness. I can so identify with where you are as I experience many of the things you addressed. I’m much older than you , but growing wiser in my years has not taken away the realities of how I must live life now. I learn to cope in some of the same ways as you spoke of. I’m a woman of faith in God & I know that I have his help all the time. I couldn’t cope without His strength.
I want you to know that I’ve been in a hard stretch of late & am discouraged because my self care seems to be the priority rather than things that need doing. But in listening to you share , I received great encouragement knowing that there are others who know our challenges & are authentic enough to talk about them. It lifted my spirits and planted some seeds of hope. Thank you. Sometimes I feel very alone in this part of my life, because unless you’ve struggled with chronic disease you really can’t understand ho constant it is,
Your organizing tips are so helpful and I’ve got a continual process of staying at things, one step at a time.
Thanks for doing what you do. You’ve blessed my heart today & im sure many others as well.
Kelley Says
I have chronic migraines and when a bad one hits, I can end up in bed for three days at a stretch. Some of them I can power through, others, not so much. I’ve also battled depression for my entire adult life and that takes its toll. Add in that I had other mental health issues I didn’t even realize I had until something clicked for me and I decided to go see a psychiatrist for evaluation. Turns Out I am bipolar and ADHD, and struggle with a couple different kids of anxiety. i am 50! years old and have had all of these my entire life and never realized that was why things could be crazy for me one day, wonderful another. When I was growing up people just didn’t. talk. about. it. at. all. So trust me, I get it. This year has been all about trying to get to the bottom of my mental health issues, one diagnosis and treatment at a time. Everything else has taken a back seat. Once we have gotten me on an even keel, or as much as one can be with all that going on, then I will worry about picking up the habits I need that have gone to the wayside for a while.
Jennny Gordon Says
Dear Laura,
I am so sorry for what you are going through. I really appreciate you sharing your story. I can relate to you as I have been battling a chronic illness as well for the last 14 years. I have chronic headache AND chronic migraine.
What you said about your priorities and maintenance mode really is very helpful advice, as I put a lot of pressure on myself to have all things cleaned and organized.
I am so glad you do what you do. I have been following you and buying your products for the past few years and I have to say when I get an email from you it is one of the best things ever. With your wonderful advice, and the 3 things that you are loving I really cherish your emails.
Knowing you have to work through so many things to do what you do and just sometimes getting out of bed and showing up and putting makeup on takes everything out of you. I really appreciate you and thank you so much!
E.P. Lair Says
I know about abdominal pain. After 25 years of restless legs and abdominal pain, I finally got a diagnosis! A lifestyle center near Brownwood CA. No more restless legs; I sleep nights; my memory is better; productivity is better too. When I returned I sent a stool sample to a lab in TX. Discovered I was allergic to 12 foods. That I consumed regularly. My pastor’s daughters knew they had food allergies, but no idea how many unnamed ones. They don’t have migraines or stomach aches, enjoy increased energy and brain fog is gone. I”m sure you are now getting inundated with advice. Maybe this or something from another fan will help you. Blessings to you. By the way you are so transparent and vulnerable – love you!!
MarySue Says
Laura, thank you for sharing what’s honestly going on in your life. I’m so sorry you’re having to deal with an undiagnosed chronic illness, and glad you’re taking any “lesser” pain days to enjoy family.
I developed chronic pain eight years ago after a cervical fusion surgery. First they diagnosed Fibromyalgia, then I’ve been progressively dealing with non-diabetic peripheral neuropathy. My life has literally been turned upside down and I’m still struggling with accepting that I will probably be dealing with this indefinitely. I’m not as young as you, but I’m only 62, and have lots of things I’d still love to do! Letting go of all but the basics of the house has been easier as time goes on, but having my office in such disarray for years now is driving me batty! I may just need to throw in the towel and realize I have to donate hobby supplies to someone who can use them now. It’s just a constant reminder of what I’m not able to do at this point.
Prayer definitely helps, even a quick “Thank You, God” when a crisis gets averted or I get a pain-free hour. I hope you find answers and relief soon. God Bless.
Marie-Claude Barnabe Says
Thank you for sharing your challenges with us. We feel like we know you, even though we only do through your business, but I just know that you are keeping your priorities in the right order.
If there are moment when you feel some measure of guilt, squash it. Those who care about you know that you can’t expect to take care of anyone or anything else until you take care of yourself. It may sound like a role reversal, but you do well to accept the support of those around you. They know that you are always willing to go the distance for them, so it is only right to accept their love and support when you need them.
Your loyal followers will be there for you when you are up to communicating and meanwhile, our thoughts and prayers go out to you and your family.
Take care and God bless!
Marie-Claude
Montréal, Canada
Laurie Says
Hi, I’m sorry you have chronic illness. I also have chronic “invisible” illness that most people don’t know about. I agree with the other commenter who suggested talking to Natalie Bennett, another YouTuber. She talks about abdominal migraines, I’ve heard her talking about it on her videos. I really hope you can figure it out and get help for the pain. Love your articles and videos.
Big Al Says
Dear Laura – Sorry to hear about your illness. Please know that positive thoughts and prayers are coming your way. You have helped many people and we can help you too. Everyone has a struggle and for the first time you have explained that it is okay to let some things go until later. We all cannot be Pinterest-ready all the time. There is reality. Family and health must come first. Do what you need to do and keep going. I like Carol’s idea of 10 minutes a day… Eventually it gets done. Maybe not all at once but the mess will naturally become more organized. We are all pulling for you to be well. You have become more beautiful over the years – and that is from something inside you shining forth! Stay happy. You are loved.